ROMA SUPPORT GROUP
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​Long term or chronic illness or disability

Contents
  • Introduction to the Roma health guide​​
  • Barriers to healthcare for the Roma community
    - System barriers
    - Language barriers and communication 
    - Cultural barriers
  • Common health problems and vulnerable groups: 
           - Long term/chronic illness or disability
           - Lifestyle related illnesses and hypertension
           - Cancer
           - Mental health
           - Immunisation
           - Maternity services
           - Children and young people
           - Rough sleepers and homeless community members
  • Case studies
  • Resources

Long term or chronic illness or disability

People from groups experiencing deprivation and exclusion spend more of their life in poor health. Given the socioeconomic disadvantage and lower life expectancy common in Roma communities, many Roma patients will also be at a higher risk of frailty [1] through having multiple or long term conditions at an earlier age.  Service delivery models oriented around single conditions can result in complex care schedules for people with multiple health conditions and care needs, and lead to inadequate communication and confusion about how to plan for long term conditions. Although there is little national level data on Roma health, several local health needs assessments (Leeds [2] [3]  (2016), Barking and Dagenham [4] (2010)) have identified high rates of long term conditions in the Roma community. Health care workers in some [5]  local areas have observed that it is hard to engage with Eastern European (including Roma) communities on screening and management of long term conditions.

​Recommendations:
​
  • Develop inclusive and responsive education programmes on self-managing long term conditions in partnership with local commissioners, NHS providers and the voluntary sector.
  • Develop co-located “one stop shops” for advice and clinical services with local commissioners, NHS providers and the voluntary sector.
  • Offer extended consultations and holistic, patient-centred reviews for long-term conditions to people with multimorbidities.

[1] Friends, Families and Travellers: Reducing Health Inequalities for People Living with Frailty (2020) 

[2] A Leeds HNA from 2016 surveyed the Roma community and found that 30% of respondents said they, or a family member living in the same household, had a longstanding illness or disability. In a Barking and Dagenham HNA from 2010 of of East Europeans including Roma, chronic obstructive airways disease (COPD) and pneumonia were among the leading causes of death.

[3] Leeds City Council: Health within the Leeds Roma Community (2016) 

[4] NHS Barking and Dagenham: Health and Social Care Needs Assessment of Eastern European (including Roma) individuals living in Barking and Dagenham (2010) 

[5] City of Bradford Metropolitan District Council:  Needs Assessment - Bradford District's Central and Eastern European Communities (2014).

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  • Home
    • About Us
    • Trustees
    • Staff
    • Our Funders
    • News & Events
    • History
  • Projects
    • Advice & Advocacy >
      • Service User Agreement
      • Roma Community Advocacy Project (2014-19)
      • Elder Roma Engagement Project (2011-14)
      • Young Roma Advocacy Project (2010-13)
    • Art & Culture >
      • Roma Bridging Sounds Orchestra
      • Instrumental music classes in East London >
        • Stage performances by participants in our instrumental classes
        • Dance classes
        • Exhibitions
        • Romani Rad
        • Promoting Roma musicians and artists
        • Visual arts workshops
        • Forum Theatre Project
    • Aspiration Project >
      • Roma Aspiration Project >
        • Education Support Projects
        • Young Roma enjoy orienteering in Lee Valley Regional Park
        • Roma children visit Parliament
        • Building bridges and breaking barriers
        • Kids’ Cookery School
    • Health Projects >
      • Mental Health Project
    • Ketane - Together: Roma Shaping Futures
    • Policy and Campaigning
    • Roma and Brexit >
      • Stay Settled in Newham Project
    • Roma News Project
    • 'Roma Stories': Roma Oral History Project
    • Roma Support and Engagement Programme >
      • Roma Support Group Expertise
      • Specialist Support for Research and Consultation
      • Training for Professionals and the Community
      • Intervention Service for Professionals Working with Roma Families and Individuals in Crisis
    • Sport Inclusion
  • Resources
    • Newsletters
    • Our Publications
    • Annual Reports
    • Our Research
    • Resources for the Roma Community
    • Roma Health Guide
    • Gypsy Roma and Traveller History Month >
      • Gypsy Roma and Traveller History Month 2020
      • Gypsy Roma and Traveller History Month 2021 >
        • GRTHM 2021 Art Competition
      • Gypsy Roma and Traveller History Month 2022 - RSG Art Competition
    • Robert Dawson Collection
    • Alternative Service Providers
    • Other Resources
  • Training
    • Customised Training for Organisations
    • Public Training for Professionals >
      • Training: Roma cultural awareness
      • Training: Positive interventions for Roma in health context
      • Training: Positive interventions for Roma in education context
      • Training: Working with Roma in safeguarding context
      • Training: Working with Roma through interpreters
    • Roma Culture Workshops for Schools
  • Vacancies
    • Jobs
    • Volunteering
    • Volunteering as a trustee
  • Membership
  • Support us
    • How to donate
    • Legacies
  • Contact
    • Make a referral